Blogs

Please forgive me if you have ordered a t-shirt and we are out of it's size.  With the EVENT coming up they are selling quicker than I can keep up with.  Here is the CURRENT INVENTORY as of 9/7/2012  Thank you for your understanding.

ADULT:

small- 0

medium- 1

large- 10

xl- 29

2x- 4

YOUTH:

small- 6 

medium- 6

large- 0

xl- 6

6 month onesie- 1

12 month onsie- 2

I am nearly done preparing for this event...I will be Auctioning off HOT AIR BALLOON RIDES, a TOP GUN EXPERIENCE, and a Family 4 pack to Dinseyland, Knots Berry Farm and Dinner at Medieval Times. It's 4 day 3 night getaway and Hotel is included.... I will be able to accept VISA, MASTERCARD, AMERICAN EXPRESS AND DISCOVER...looking forward to seeing everyone there.  

So....the good news is, we will stop using the Sirolimus, as it is no longer therapeutic (for now), and the tumor has shrunk...1cm......the troubling news is it is still there in the size of 3.6cm by 5.0 cm.....I will post a pic to give you an idea.....and as I predicted and questioned 2 MONTHS AGO.....its confirmed she has scoliosis and will be starting physical therapy.... The tumor is AROUND her spinal cord, less bulky but in a critical area.

To Spread Awareness about KMS,  By sharing our personal journey through our trials and tribulations  In hopes that there will be FEWER mis-diagnosed children of this RARE disease.

Wow, I m so excited to have this amazing website, My mission for this is to spread awareness about Kasabach-Merritt Syndrome

New KMS with Autumn Star website launches!!!!